September is also Dystonia Awareness Month!
According to my neurologist, I have it. For me, it causes weakness in my right arm and leg, and of course the ever-present tilted head. We tried Botox and that wasn’t for me, but luckily I have a family who understands what’s going on with me and also ice is my friend. (I’m pretty sure my symptoms are actually from Chiari, but my doctor wanted to see if he could fix me, bless him.)
Making the best of my summer so far!
Do you ever get freaked out by stuff that just appears?
Yeah, so I don’t take that pill anymore.
Blessed are those who can grab their sternocleidomastoids. Or something. I’m sleepy.
I’ve recently been diagnosed with cervical dystonia, which sounds disgusting so I’ll call it wonky neck. I’ve had wonky neck for so long I’m genuinely surprised by life without my own muscles trying to rip my head off. This is not a new thing, it’s probably secondary to the Chiari, but being both things are weird conditions not many people know about, it took forever to get a name and a sensible doctor–I mean treatment. I am not cured, but I feel a hell of a lot better.